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| Bryson & Brylee Johnson, born at 29 weeks |
Our NICU story
starts out like many others – scary! Like many couples, we had to deal with
infertility, and after two years we sought fertility treatment. We were so
blessed that out first IUI worked with great success. We had not one, not two,
but THREE little babies!
Scared to get attached to all those babies, we went on with
life, only telling a few family members. Then after each doctor appointment, we
stared to wonder what life would be like with three small babies. At the 11-week
checkup things didn't look promising for Baby C, and at 13 weeks we lost our
triplet. So now we were told Baby A and B looked healthy and we could breathe
and start planning life with twins!
Still scared but excited, we took it full-force and went
baby crazy. Up to this point, even with all those babies I never had morning
sickness and was as healthy as I could be. Both our regular OB
and High Risk OB said things were perfect and I could expect to carry my twins
to term. Both doctors were cautious in saying that and told us all the risk we
faced with multiples, but we all remained positive.
At 18 weeks we found out it was a boy and a girl who we
named Bryson Michael and Brylee Abbigayle. Things turned upside down at 28 weeks
when we were told that Brylee wasn’t growing since our last check up, which
meant her placenta wasn't providing her with enough blood. We were devastated
as we were told that Brylee had a 30 percent chance of living, while Bryson had
a much larger chance due to his growth being on track where Brylee was more of
a 24-week-old baby.
So off to the hospital for steroid shots, and after some
convincing of my doctor I got to hold my babies in one more week. At exactly 29
weeks, we delivered two tiny miracles.
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| Bryson Michael Johnson |
Bryson weighed 2 lbs. 12 oz. and was 15 inches long, and
Brylee weighted 1 lb. 8 oz. and was 12 inches long. As they were born via
c-section, I heard two little cries and I was OK for a moment. Then my husband
and a team of nurses headed to the NICU where my kids would stay for the next
72 days.
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| Brylee Abbigayle Johnson |
The first time I saw my precious babies, I didn’t know what
to do or say. I had never seen such tiny miracles. I was told they were healthy
for their age, but not to expect too much because there was so much we wouldn't
know until later. We took it hour by hour just like we were told.
We had a very typical NICU stay – everything went by the
book. They had a lot of respiratory issues at the beginning: ventilators,
c-pap, then graduated to the nasal canula. That was a proud day.
Then onto eating and eating slowly. Feeding your baby while
holding a syringe and letting a tube feed them became second nature. We got
into the routine of checking temps, changing diapers and getting to hold a baby
while they ate, then back in the giraffe bed you go – and do it all again at
the next care time.
We became so accustomed to it all that our nurses let us
take over when we got there. Bath
times were always Tuesday and Saturday nights, and that became such a fun time
for me because I felt like such a Mommy in that moment.
Like I said, we had our typical ups and downs: stay on oxygen, get off oxygen, back
on it, turn up the volume of food, turn it down, get a great report then get a
bad one. But out of all those moments, I just thanked God that because of this
NICU, I still have all these moments good and bad.
At 38 weeks Bryson had hernia surgery and Brylee had lasik
surgery for her ROP. Those two scary things happened two days apart, and I felt
like I was starting over. Bryson did great and went right back to no oxygen and
getting a bottle, while Brylee had to start all over. After a week it was all
sorted out and we took our babies home. Although Brylee wasn’t eating well,
they said we could handle it. We had been taught well by our nurses – we had it. So with a list of medicine,
syringes, diapers and lots of love, we went home at 39 weeks gestation. We were
surprised as well as our nurses.
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| Bryson & Brylee, age 6 months |
Looking back now almost one year later, I can’t believe we
coped with it as well as we did. All those tears and scary days are behind us
and now we have two babies who we can keep at home with us all because of the
care, love and prayers they received at Huntsville Hospital NICU. And because if those amazing
people our NICU stay wasn’t so scary. It was odd how you can get used
to life in the NICU. As hard as it was sometimes, you caught yourself laughing
and having a good time like nothing bad was happening. That was all because of
the amazing doctors, nurses and staff at HH NICU. I know I
could not have made it and been as strong as I was if it wasn't for them, especially our primary nurses: Kathy Morrison, Amanda Ergle and Tracy Watson,
who not only cared for and spoiled our babies, but us, too.
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| Brylee & Bryson, age 9 months |
I will never be able to thank them and every nurse who took
care of us for what they have done for my family.
Lacey and Michael Johnson
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| Brylee & Bryson Johnson, age 11 months |